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New Diagnosis of Prader-Willi syndrome?

FPWR was founded by parents of children with Prader-Willi syndrome (PWS). We know what you are experiencing! Please know that much progress in research is being made to help children with PWS.

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Rachel's Corner

  • FPWR Reaches $1 Million Mark in Funding PWS Research
  • Cicada Power
  • One Little Mouse....One Big Dream
  • 2008 FPWR Conference focused on Prader-Willi Syndrome Research & Advocacy
  • Working Together to Fund Prader-Willi Syndrome Research!
  • Prader-Willi Families Photo Gallery Launched!
  • FPWR Qualifies for the Combined Federal Campaign
  • The Importance of Advocacy
  • 2008 Fundraisers for FPWR
  • Message Boards and Hope

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Recent Press Releases

DateTitle
8-8-2009One Million Dollars in Prader-Willi Research Funded by FPWR
6-26-08Foundation for Prader-Willi Research Partners with the Salk Institute on Prader-Willi Syndrome Research
December 14, 2006The Foundation for Prader-Willi Research Awards Research Grant

Advocate for FPWR!

Our Annual Conference and our first ever Hike the Hill events were a success, but there is much more to be done!.

We need you to act now to help us get enough co-sponosors for HR 1386 to bring it up for a VOTE! support FPWR's prader-willi advocacy efforts today!

Look here for an update on our conference!

Upcoming Events


Sat Nov 1 2008
ROCHESTER HILLS, MI Brody's Ball 2008

Sun Nov 2 2008
NEW YORK CITY New York City Marathon

Sat Nov 15 2008
PHILADELPHIA, PA 3rd Annual Beef n Beer

Sun Nov 16 2008
Mar Vista Walk

VIEW THE CALENDAR

FPWR Photo Gallery

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Join FPWR

Learn about the FPWR and how you can help further our cause. We are a dynamic group of individuals with a focus on helping children with Prader-Willi syndrome.

» JOIN US TODAY!

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